Seeing myself for the first time in a full-length mirror broke me down 😢 The steroids really make you look like a different person... And on top of that, I had lost so much weight 😧😭 Thankfully, my mother was sweet enough to turn the camera off and give me a moment.🧘♀️🏻 I spent countless hours in this room trying to gain my strength back, 🦵🏼💪🏼🏋️🏻♀️ But I still couldn’t feel much of my lower body... No choice but to keep moving... To keep trying.
Side note: I know you see me wearing the same outfit again and again... It was the only outfit I had with me when I arrived to the hospital. They were kind enough to keep washing it for me ✅ (Can someone please bring me a change of clothing?!?) 🤦🏻♀️ #Nike#JustDoIt#signatureyellowsocks 🧦
Posted at: 2019-07-06 18:12:13
”They both feel like Jello” 🦵🏼🦵🏼but watching this shows me that I am just a little stronger.
So hard believe... Nothing about this is me and I don't recognize myself 😣#steroidFACE
Posted at: 2019-07-07 18:32:33
Absolutely love my physical therapist Suzanne 🧡. Today she applied the Feldenkrais Method on me to reorganize connections between the brain and body since I have had limited mobility.🧠🦶🏼🤲🏼💪🏼🦵🏼🙏🏼 I felt wonderful after it like my body was fully relaxed and I melted into the bed 😌🛌#Feldenkrais#feldenkraismethod
Mom flew in from the east coast🥰 I have such amazing friends and family💕 I don't know what I would do without the support🙏🏼 #momsmakeeverythingbetter
Posted at: 2019-07-10 17:20:47
🐠When life gets you down, you know what you gotta do...? Just keep swimming, just keep swimming, just keep swimming swimming- swimming 🎶#namethatmovie !?
Posted at: 2019-05-04 10:15:07
It’s infusion day!! Today is my first full dose of Ocrevus! I’ve got a private infusion room, a reclining chair with heat, a tv, and a private restroom! And of course I’ve got a donut!
Posted at: 2019-07-07 11:08:43
It makes sense that our digestive systems are designed to cope with only one food at a time.
Consider the digestion of a sandwich, usually a combination of bread (starch) with meat or cheese (protein) and possibly a condiment.
Unfortunately starchy foods require an alkaline digestive medium, where protein-rich foods require an acid medium. If you know your basic science, when acids and bases (alkaline) meet in any situation, including the stomach, they neutralise each other. Thus, this neutralisation causes the digestion of food to be arrested.
With no acids breaking down the food they quickly start to ferment and putrefy, causing gas, bloating and acid reflux.
Eating mono meals is the best for optimal digestion, absorption and assimilation of nutrients. Eating one food stimulates the perfect digestive response for that particular food and allows for complete digestion.
#fruitarian #801010rv #raw#rawlife #rawfood #rawlifestyle #vegan#vegans #vegansofig #801010#vegansofinstagram #plantstrong#rawforhealth #MSwarrier#MSsucks#plantpowered#plantbased#fueledbyplants#fruit
💫FIRST RUN IN 2 WEEKS💫 Tonight was so tough my legs felt SO heavy and it was a much slower pace than usual. However I am PRETTY happy with it. I will admit it has taken me a while to feel happy about it, I got to a good pace a few months ago and I was really enjoying my running and bammm💥MS happened. 🙂 I lost ALL feeling in my legs for 3-4 weeks and I've had to build up my strength from scratch when the feeling came back. Just the fact I can feel my feet and legs running at the moment is enough for me. I listened to my nurse and have taken long breaks from running when I feel my body is playing up and I feel much better for taking time out. If I continue at the pace i was tonight it means I can run my 10k on Sunday in 1hour 22 minutes.. and that'll be perfectly okay with me 💜
#ms#msquestions #mssociety #mssucks #mssymptoms #msstruggles #msstrong #mswarrior #mstribe #msfighter #msstrong #mslife #lifewithms#chronicillness#disability#disabilityawareness #running#runninglife #disease#illness#chronicillness#fitness#healthy#healthyliving #exercise#energy#walking
#Enzian finde ich wunderschön und das Blümchen hat Strahlkraft muss es sich doch gegen ganz schön viel durchsetzen. Wanderer, die drüberlatschen, das Wetter und Tiere. Und doch hält es am Berg die Stellung. Mancher Mensch, der mit #ms lebt ist wie so ein Enzian. Mit Strahlkraft, klaren Ansagen und Durchhaltevermögen. Menschen mit #ms sind oft besonders, sie suchen sich Wege und schaffen oft mehr als der Rest. Und ich mag sie, nicht weil ich selbst mit #multiplesklerose lebe, sondern weil ich das Vergnügen hatte, viele zu treffen und mich mit ihnen auszutauschen. Einige wurden zu Freunden. Und dafür bin ich dankbar. #birgitsworld#mssucks #msblogger #msfriends #multiplesclerosis#meetthebloggerde#lifewithms#msfighter #friendship#flower#nature#flowerlove #coloryourlife
I hit a bit of a wall yesterday. Feeling absolutely drained, nauseous, and just a tad defeated. It’s so hard for me to just rest. I always need to be doing something and it’s very frustrating more than anything.
I went into bed to read, like I do every night, and I opened up my book to see this. If anything, my MS has made Juliana so compassionate. She will rub my arm or just sit with me when I don’t feel good. She is really starting to understand what my MS does to me sometimes. She is just the sweetest.
This is not a random post about a make believe product with a picture of a stranger, this is MY product and MY results and MY picture. I love that we sample of our Smart products so you know immediately if it's for you. The 3 day sample is to tell you if you feel the energy and like the taste, the REAL transformation is once you buy a 30 day supply- it takes 14 days to reset your metabolism so start NOW, start TODAY - you have a 30 day money back guarantee if you are not happy. Put an emoji below if you want me to send you a free sample and start your journey!
I made it to Hype this morning. I’m trying to really relish the time I have left to work out there before the kids studio closes. My tendency would be to just quit, move on, find a new place, but this seems as good a place as any to practice being in the uncertainty and even a little uncomfortable.
Melissa took us to kidspace today. The kids loved it. I forget how great it is until I get there. One thing though. One thing I don’t want to write because I don’t want it to be true. The kids love the water and yes, they can go by themselves, but Welles needs help getting around the slippery rocks. If Melissa hadn’t been there to help her, I’d have had to tell her no. In this heat my feet get numb and it can be difficult to know where they are in space. The cold water doesn’t help because the issue doesn’t really have anything to do with my feet. I guess it could if I dunked my whole self in but it’s not that kind of place. I can shuffle along and get by, but the truth is, I need help. I’m so lucky to have someone in my life who says, maybe this isn’t a safe place for you to walk, I’ll take her where you can’t. Someone who lets me do what I can and have that moment with Welles but knows better than I do to step in and take over. I could cry from the gratitude I feel thinking about it.
Our beloved J and B came over tonight and brought and set up a fancy hot wheels track. It’s still unclear if the toy was for the grown ups or the kids. And there were tacos and queso.
I’ve had a few pretty intense realizations today but it was okay. It will be okay. It’s all about sitting with it, right?
I’m so grateful for my people.
Well we finished ... running and with a smile ... that’s a HUGE WIN in my book! .
For those who have followed me over the past few months ish ... here’s how today went 😆 ...
The swim was the BEST open water swim (OWS) I’ve ever done ... my pace was quick, but that’s not why ... it was the best bc I was comfortable and had 0 race adrenaline hyperventilating issues. I was relaxed and cruised! .
The bike was hilly, but we knew that was gonna happen 😆 ... and I PRd on this road so Whoo hooo!!!! The bike burned my quads like no other but it was fun. AND I saw a herd of elk probably close to 100 of them! Incredible sights.
The run ... wow is all I have to say ... well it was elevation and a huge climb and let’s just say it’s the slowest run I’ve had in YEARS! I literally ran 40 paces walked 10 paces the entire way. Finished at a 10 min mile ... 😝 ... BUT I finished ... I finished running and with a smile on my face and THAT is all that matters to me 🧡💪 .
So today I got to say #FUMS in style one more time ... and every day I get to do that is a GREAT day. .
#multiplesclerosis#mutiplesclerosisfighter#multiplesclerosiswarrior #spoonie#spoonielife #spooniewarrior
#mswarrior#takethatms#mssucks#workout#homeworkout#workoutathome #fightback#chronicpain#momlife#momof4#fitmom#momswhoworkout#workoutmom #momofspecialneeds#cerebralpalsy#autism#fibromyalgia
Heat+humidity+hangover=slow AF run, less miles than planned and surprisingly enough hangover remedy #mssucks#forjennie
Posted at: 2019-07-14 10:12:17
Falling twice in 2 days has me keeping my cane close and more eyes on me than I would like. I’m thinking I should invest in myself and get a fancy cane just for me like @selmablair If ever there was someone in this world that could inspire everyone it would be her ❤️
Heute packte mich die Wanderlust. Etwas, das nicht immer geht, wenn #trullazickt bleiben mein Wandersachen im Schrank. Ehrlich gesagt, ich bin auch im Einiges langsamer, aber ich bin hartnäckig und schaffe meine Touren. Und an die Vollidioten, die heute an der „Alten“ vorbeizogen und sich ihrer Stärken rühmten und die schleichende „Alte“ zur Seite baten: Ich schaffe vielleicht kein Handstandselfie für Instagram. Aber ich schaffe es mit #ms den Berg hoch. Manchmal sollte man den Mensch einfach Mensch sein lassen. Egal wie schnell er ist. Oder eben nicht. Es gibt sicherlich Gebiete, da überhol ich Euch gepflegt rechts. Ganz ohne unhöflich zu werden oder ahnungslos zu bewerten was andere anders machen. #birgitsworld#ms#msblogger #mssucks #multiplesklerose#multiplesclerosis#wanderlust#wandernmitms#lifewithms#hiking
Ok... moving or at least getting ready for Russia 🇷🇺 woo getting close!
Doesn’t seem to stop, one thing after the next but then a new life :)
Posted at: 2019-07-13 22:04:52
Alot tired today, did a little bit. Then got really run down 🤦🏻♀️ sometimes I wish I was still strong but I don't seem to have a lot of strength left in me anymore. Even a little exertion wears me down. It's a hard reality to face sometimes. I want to be productive and get stuff done, hard to keep motivation when it hurts to breathe 🙍🏻♀️ it's days like this that make me want to bawl my eyes out curl up in a ball and try to forget about how much I feel like a failure at everything in my life. I'm trying so hard to stay positive and on the bright side but this brain of mine is sure tearing my ass down alot lately. I wonder if I will ever be good enough. At any rate getting a bit spacy again.
I really feel so lost in the darkness I don't know my way home anymore.
Posted at: 2019-07-13 20:16:16
This morning started with geological exploration. First, Laurel Caverns. Then a trip to the highest point in PA, Mt. Davis. The caverns weren't a long walk, but there were lots of ups and downs. I didn't think I'd be able to climb the fire tower, but I did.
An hour's drive later, we were in Shanksville. It wasn't a planned stop, but since it was so close, we went. Glad we did. It was very moving.
The entire day, we drove through the most picturesque rural views I'll ever see.
1st photo was from this time last year & 2nd 3wks later there was so much more happening in my body at this time then just growing a baby. Unfortunately not good things but as my body was struggling to put one foot in front of the other in pain by the end of everyday & waking up every day & praying that I would still be able to walk it was so scary but in the same time feeling so blessed that I was pregnant again this scary time in my life definitely has taught me to look at the beauty in every day & I just want to keep living to see my kids grow every day even if circumstances aren’t ideal. #mssucks#mswarrior#mspregnancy#blessedlife